Evolving Advocacy Engagement from Transactional to Transformational

Pharmaceutical companies and advocacy organizations operate at the crossroads of patient needs for education, legislative action and innovation. It is at this intersection that some of the most powerful partnerships have been born. Partnerships yielding meaningful outcomes are rooted in respect and nourished by connectivity, transparency and authenticity.

Our advocacy engagement experts bring decades of diverse experience in nonprofit and private sector partnership consulting for pharmaceutical, biotech and device companies, as well as patient and professional advocacy organizations. As a result, our experts are adept in forging impactful relationships and bridging gaps between companies and their customers. Our unique approach and perspectives allow us to identify and deliver innovative solutions that can simultaneously address business challenges while improving patient care and outcomes.

For more information about our advocacy capabilities, please contact Jeanine O'Kane.

For too long, the patient voice was limited to discrete milestones late in the product development lifecycle. We help clients infuse the patient perspective and voice throughout clinical development and commercialization with input mechanisms providing a continual feedback loop. With our unique approach, we are able to anticipate and address critical needs throughout the development process – eliminating unintended consequences or downstream issues.


Today’s landscape of increased scrutiny, social media activism and access barriers demand a fresh approach. Give us a call to see how we may be able to support you in:

  • PARTNERSHIP IDENTIFICATION, MAPPING AND ENGAGEMENT STRATEGY

    Identifying and addressing shared goals within a particular community requires thoughtful analysis at the outset. Stakeholder Mapping, which involves primary and secondary research, evaluates key groups and influencers on the basis of expertise, influence and partnership potential. It is from this foundational exercise that groups can be prioritized and an engagement strategy aligned to business goals can be developed.

  • PARTNERSHIPS AND COALITION MANAGEMENT

    inVentiv Health Communications has orchestrated Partnerships and Coalitions of all shapes and sizes to address client business needs. Successful partnerships and coalitions are transparent at the outset, have clear governance structure and are rooted in clear, measurable objectives that result in benefits for all engaged parties. Key areas where partnerships and coalitions are typically most successful include disease state education, clinical trial recruitment, preserving or securing access to treatment or services, patient literacy and screenings.

  • COMPETITIVE BENCHMARKING

    Keeping track of competitor engagement within a patient advocacy community can shed light on activities that have either worked or backfired in a particular community. Advocacy Competitive Benchmarking can also uncover shifts in strategy or priorities among competitors. Comprised of desktop research, including review of annual reports and other communications channels by advocacy groups and companies, this type of benchmarking allows for companies to gain a greater handle on how their competitors are operating within a particular space.

  • LEADERSHIP & VISIBILITY STRATEGY AND MANAGEMENT

    The level and type of advocacy engagement is a strong indicator of a company’s commitment to a patient community, and visibility within the community can go a long way in demonstrating patient-centricity to internal and external stakeholders. Leadership Visibility Strategy & Management can organize and humanize your company’s commitment and allow you to foster true connectivity by making sure the right internal representatives are deployed to the most appropriate events.

We also offer:

  • Advocacy and stakeholder mapping
  • Policy audits
  • Disease awareness/public health initiatives
  • Clinical Trial recruitment
  • Coalition development/management
  • Patient advisory boards
  • Community summits
  • Hill Day activities
  • Awards programs
  • Sponsorship strategy and management
  • Issues management

For more information about our advocacy capabilities, please contact Jeanine O'Kane.

MENTAL HEALTH PAYER PERSPECTIVES

In more than 15 hours of interviews, executives at managed care organizations covering more than 59 million lives talked about issues that are top of mind for mental health patients, including medication access and psychiatric care.

AN ADVOCACY RX FOR PROGRESS IN MENTAL HEALTH

In this report, inVentiv Health has collected insights from pharmaceutical companies, payers and other key stakeholders, with particular attention to the recommendations, strategies and aspirations of patient advocacy groups in mental health.

BETTER TOGETHER: STRENGTHENING ADVOCACY-INDUSTRY PARTNERSHIPS

Open communications can promote stronger, more resilient collaboration among pharma companies and patient advocacy groups. In a challenging market environment, these alliances are crucial to the continued delivery of life-changing medicines.

SHARING THE MISSION TO CONQUER RARE DISEASES

This report – based on several months of extensive research and in-depth interviews - takes a deeper look at the dynamics currently reshaping collaboration in rare disease and how future roles will be defined.

THE NEW PARTNERSHIP PARADIGM: WHAT PATIENT ADVOCATES SEEK FROM PHARMACEUTICAL PARTNERS

This report -- based on more than two months of interviews with nearly four dozen patient advocacy organizations -- highlights areas in which patient advocates would like to see change in their relationships with pharmaceutical partners, as they work together to ensure that new medications arriving on the market meet the needs of people with devastating diseases.

PATIENT PARTNERS IN ONCOLOGY

A supplement to “The New Partnership Paradigm: What Patient Advocates Seek from Pharmaceutical Partners” (download above), this summary highlights how pharma companies and advocacy groups serving cancer patients can build stronger, more authentic alliances.